Through blogs and comments, patients and experts explore what it takes to find good health care and make the most of it.

Cancer Survivorship: "I Call Me Lucky"

|

article image
Follow us on Facebook

"I have been treated for five different cancer diagnoses. Some would call me a survivor. I call me lucky," observes CFAH President Jessie Gruman. Jessie recently released a series of posts on What I Wish I'd Known Earlier About Cancer Survivorship, lessons learned over the years about the unique needs and responsibilities of those who have been diagnosed and treated for cancer. Here are some thoughts from other survivors:

In Skin in the Game, patient advocate and health care writer Eve Harris says, "Cancer changed my life, but it doesn't define it – please don't call me a survivor." Instead, she says, "What I am is eight and a half years post-breast cancer with no evidence of disease. My prognosis is good. I feel healthy and my care providers seem to agree I'm in good shape."

"For millions of cancer survivors, while each day is special, some days are anxiety-producing. For me it's when I have a strange ache or pain. I rarely tell Esther, but I worry. For almost everyone it's on days when we are having a 'checkup.' The worry is, is this the day another shoe will drop?" Andrew Schorr, a patient advocate who was diagnosed with chronic lymphocytic leukemia in 1996, recalls his fears post-cancer treatment in Cancer Survivorship and Fear.

Susan Zager, founder of Advocates for Breast Cancer, describes her lingering apprehensiveness in My Life Will Never Be Normal: "While I am thrilled that I currently have no evidence of disease, I am concerned that those with metastatic breast cancer have sometimes been lost in the sea of pink survivors. I was prescribed tamoxifen after my cancer recurred five years ago (and have tolerated the drug), but I live with the knowledge that my cancer could eventually become metastatic."

More Blog Posts by Conversation Continues

author bio

Conversation Continues feature ongoing discussions or news on current health topics with links to related materials.  They are part of the Center for Advancing Health’s portfolio of free, evidence-based coverage of what it takes to find good care and make the most of it.


Tags for this article:
Cancer   Inside Healthcare   Get Preventive Health Care   Jessie - Cancer Survivorship Series  


Comments on this post
Please note: CFAH reserves the right to moderate all comments posted to the Prepared Patient® Blog. Any inappropriate postings will be removed.


Toni K Roberts says
December 18, 2013 at 5:11 PM

Any one out there with colon cancer in 1985; resection with foot and 1/2 removed who had 28 or so radiation treatments to pelvic area? Now have been diagnosed with C.IDP? now take IVIG infusions every five weeks for 5 hours. CIDP started October 1st 2010. Now gone from wheelchair, to walker, to cane to walking very carefully.