Facts of Life
Facts of Life:
Issue Briefings for Health Reporters
Vol. 8, No. 5
May 2003
The Forgotten Population:
Health Disparities and Minority Men
The Issue
The Facts
Interview: David R. Williams, Ph.D. Explaining the Crisis:
Why Poor Men of Color Have the Worst Health
Interview #2: Dean Robinson, Ph.D. Searching for Solutions:
From Community Demonstrations to National Models
The Role of Race, Racism and Discrimination in Health Outcomes
Men’s Health Initiative: Laboratories for Community
Innovation
Addressing the Issue of Unequal Treatment
Bibliography
The Issue:
Health professionals, researchers and activists are finally paying attention
to the need to reduce racial and ethnic disparities in health. But efforts
to address these disparities often omit men, a forgotten demographic in
health policy and practice. Men of color are less healthy than any other
group and more likely to suffer chronic conditions. They have reduced access
to care and are more severely affected by the underlying causes of disease.
Thus far, men of color have been underrepresented in proposed solutions
to health disparity problems.
The Facts:
- Life expectancy for African-American men is 7.1 years less than for
white men, 7.5 years less than for African-American women and 12.7 years
less than for white women. [1]
- African-American men die of heart disease at a rate of 244.7 per 100,000 — more
than 2.5 times the rate for white women. [1]
- Cerebrovascular disease
is twice as likely to kill African-American men, at a rate of 50.5
per 100,000, as it is to kill white men
or women. And 221.1 per 100,000 African-American men die of cancer — more
than twice the rate for white women. [1]
- For HIV/AIDS, the
differences are huge. African-American men die of complications
from HIV/AIDS at a rate of 62.7 per 100,000,
compared with
25.5 for Latino men, 19.1 for African-American women, 12.5
for white men, 5.9 for Latino women and 1.8 for white women.
[1]
- Poverty, income inequality, low educational status and
unemployment are more likely to affect men of color. [2]
- Residential segregation
by race and income is a powerful
cause of poor health, concentrating multiple economic and
social problems and
undermining the quality of housing and services. [3]
- African-American
and Latino men are less likely than white men to see a doctor, even when
they are in poor health. [4]
- For non-elderly men, 46 percent of Latinos
and 28 percent of African-Americans lack health insurance. Men of color
are
less likely than white men to
have job-based insurance, and only 6 percent to 8 percent
of Latino and African-American men have Medicaid. [4]
- Regardless
of insurance status, men of color are less likely to receive timely preventive
services, and more likely to suffer the
consequences
of delayed attention, such as limb amputations and radical
cancer surgery. The Institute of Medicine has found significant racial
and ethnic disparities
within the health care system. [5,6]
Interview:
Explaining the Crisis: Why Poor Men of Color Have the Worst Health
with David R. Williams, Ph.D.
David R. Williams is a sociologist whose work focuses on the causes of
ill health, including social circumstances, race/ ethnicity and discrimination.
He is a senior research scientist and professor at the University of Michigan’s
Institute for Social Research. Among Williams’ most recent papers
is “The Health of Men: Structured Inequalities and Opportunities” in
the May 2003 issue of the American Journal of Public Health. [7]
Q/ Why do you think there
is a crisis in minority men’s health and what
are its implications for the individuals involved and society generally?
A/ Minority men — especially African-American men, where we have the best
evidence — have much higher rates of illness and mortality than non-minorities.
It’s been 400 years and the United States hasn’t made much progress
in reducing the gap. Both minorities and non-minorities have improved in the
last 50 years, but the relative difference has remained unchanged in virtually
every way. [7]
This is significant because
we live in a society that values equal opportunity and health is a prerequisite
to
that opportunity. To the extent that a particular
group is unhealthy, they are less likely to make it to the starting gate. In
addition, much of the excess loss of life experienced by minority men occurs
during what should be their most productive years — exactly the time
they could be contributing to society economically and in other ways. Finally,
research suggests that where there are small pockets with a very concentrated
level of pathology it can actually spread to the larger society.
Q/ Low-income
minority men seem to be triply disadvantaged — by socioeconomic
status, race and gender. Could you discuss the importance of these three factors
and how they are interrelated?
A/ One of the strongest
determinants of health in the United States and throughout the world is socioeconomic
status. This is true for all men and women, but
beyond the effect of SES, ill health is also linked to race/ethnicity. And
in virtually every country, men are sicker and die sooner than women. The three
factors interact in complex ways. It’s not easy to disentangle one from
the other, but together they create enormous disadvantage. [2]
Q/ What are the pathways by which these three factors affect health?
A/ Let’s talk about
SES first. Virtually every protective characteristic or health risk is distributed
by
SES. Smoking, alcohol and drug use are all
less common among those with higher income and education. Access to care and
quality of care are higher. Stress is lower, and we know that stress is a very
powerful determinant of health, present in many pathways.
Gender works in several
ways. There’s no magic bullet. Economic marginality
and the absence of work are linked to SES for men and women, but men in particular
see themselves as providers. When they can’t play that role, their lives
and health are affected. Men are over-represented among the homeless, the prison
population, substance abusers and people with severe mental illness.
Working at a lousy job is also bad for your health. More men than women are
in dangerous and stressful occupations.
Cultural beliefs about masculinity also affect health behaviors. Women are
more likely to seek care and to engage in health-promoting activities, and
it appears that they have more effective coping mechanisms and social support.
Men are more likely to respond to stress by using alcohol, drugs and tobacco.
Race also affects health
in multiple ways. The problems of work and marginality that are present in
men generally
are more pronounced among minority men. Research
has shown that among men with the same job titles and advancement, minorities
are more likely to face occupational hazards and stress. Location of residence
is also linked to race. One study of the 171 largest cities showed there was
not one where the average African-American neighborhood was better than the
worst white neighborhood (in terms of quality and living conditions). Finally,
the experience of racial discrimination is an added source of stress — one
that makes an incremental contribution to ill health. [8]
Q/ Do you think the roles of genetics and personal behavior have been overemphasized?
A/ It’s important to note that the pathways of race are linked to the
structure of society and to social experience — not to biology and genetics.
We have known for some time that racial categories don’t capture much
biologic distinctiveness, and they are unlikely to be a major explanation for
heath disparities. Still, we need research on how genetic and other biological
factors may interact with the social environment to create pervasive health
problems.
Behavior is much more
complicated. It’s clearly an important pathway
in determining health. At the same time, we cannot understand behavior in a
vacuum. The larger challenges individuals face in their lives affect their
behavior. For example, nicotine is a drug that provides momentary relief from
stress; so smoking is more prevalent among those where stress is highest. I
hasten to add that there’s also a profit motive at work here. Low-income
and minority neighborhoods are targeted by billboards advertising cigarettes
and alcohol, liquor stores and fast food outlets.
We need to acknowledge that behavior is a factor but not the only factor,
and that there are various ways to try to improve it. For example, there has
been a dramatic decline in smoking in the last three decades, but the decline
has been much more common among people with higher educational levels. They
tend to have healthier alternatives for dealing with stress, such as gyms and
spas. When your options are constrained you are more likely to cling to an
unhealthy but temporarily satisfying behavior.
Q/ You have said that in some cases middle-class African-American men may
face even higher health risks than lower-income African-American men. [7] Could
you address this apparent paradox?
A/ I believe this is one
example of the added burden of race. The health of middle class African-American
men is generally better than that of poor African-American
men. But for some conditions — hypertension, suicide and stress — it’s
worse. The same is not true for African-American women.
Research shows instability
and tenuousness and more unemployment among the African-American middle class — especially the first-generation middle
class — compared with whites. African-Americans have made a lot of progress
in closing the education gap with whites, but not the income gap. They earn
less at every level of achievement, and they don’t expect their investment
in education to pay off at the same rate.
Q/ Could you discuss how residential segregation affects health?
A/ Residential segregation by both race and income is one of those fundamental
causes that has received inadequate attention as to its effect on factors linked
to health. Segregation by race and income is increasing, leading to loss of
neighborhood resources. In the United States, dollars for education come largely
from local taxes, so segregation tends to mean lower-quality schools for minority
students.
Employment options also decrease as an area becomes more segregated. Pharmacies
are not well stocked; groceries are of lower quality and fresh fruit and vegetables
are either unavailable or very expensive; playgrounds, walkways and opportunities
to exercise are rarer. Safety is a factor, and tends to reinforce both lower
use of facilities and withdrawal of services. The more severe the concentration
of problems, the less the possibility of the neighborhood ever recovering.
[3]
Q/ What do you see as some possible solutions to these problems?
A/ One central point is
that the health of men is embedded in larger experiences in society. We have
to improve
the quality of life through good, well-paid,
safe jobs and livable neighborhoods and communities. For men, it’s also
important to think of serious, active educational outreach — ways of
dealing with cultural biases and reinforcing positive behavior. And, more narrowly,
we need to improve access to health services and address findings that minorities
receive less timely and intensive treatment and poorer care.
Regarding residential
segregation, it’s not inherently bad to live with
one’s own race. Communities of like culture can be important sources
of support. What’s damaging is the accumulation of ills linked to poverty.
Our neighborhoods need a massive commitment of resources to rebuild their physical
and social structures.
We need better schools, employment and training and retooling programs, and
transportation to where the jobs are. Every child growing up should have access
to good opportunities. We need to think long and hard about the next generation,
and the high levels of poverty we tolerate among kids, especially minority
kids.
In the last 50 years,
there have been few signs of dramatic change in our living patterns. But
it’s important to evaluate every government policy’s
impact on health. We need to understand how things like housing, agriculture,
labor, transportation and economics shape individuals’ lives — and
how health is embedded in all of them.
Interview: Searching for Solutions:
From Community Demonstrations to National Models
with Dean Robinson, Ph.D.
Dean Robinson is a political scientist specializing in African-American
politics, access to health care and policy solutions. An associate professor
at the University of Massachusetts, Amherst, he is currently on leave as
a W.K. Kellogg Foundation Scholar in Health Disparities at the Harvard
School of Public Health. Robinson also serves as program director for the
Center for the Advancement of Health’s Men’s Health Initiative.
Q/ Why do you think it’s
important to study the health of minority men?
A/ I first became interested
when I was at UMass and working on a state universal health care campaign,
before
I had read much public health literature. It was
obvious to me that the distribution of illness and disease was disproportionately
skewed to low-income people and racial/ethnic minorities — and that this
was related, at least in part, to differential access to care.
Q/ How does this affect men in particular?
A/ Poor men’s need
for health services is not well understood. For example, Medicaid, the federal/state
program financing care for low-income people, is
so tied to people with kids. There are only 11 states where individuals who
are neither disabled nor on-site parents qualify just because they are poor
or near-poor. [9]
And even that coverage is at risk as state budgets grow tighter and programs
are slashed. [10] When push comes to shove, they will protect women and children
first.
Yet low-income men — especially minorities — are least likely
to be insured. [4] So they don’t get preventive services, their health
is poorer and they die sooner. [1]
Men themselves tend not
to seek care and community programs, even those that care for the uninsured,
don’t
always reach out to them.
Q/ Do you think this happens because we see men as less deserving?
A/ It’s a combination of things. The safety net covers kids first. It
scoops up more women than men because women are, by and large, the caregivers
for the kids. Then there are norms and socialization. We think guys don’t
get sick and we don’t have the same concerns about them. In addition,
in recent times we’ve emphasized dependence on the private market to
distribute health care.
Free market solutions
don’t work with a group that has entrenched difficulties
with the labor market, or jobs that don’t provide insurance and incomes
too low to purchase it themselves.
Q/ What are some
of the specific health care issues of low-income minority men?
A/ Recently I was a participant/
observer in focus groups held by the Denver Health program to get at just
this question. For African American men, trust
of the health care system was an issue. Several members of the focus group
mentioned the Tuskegee experiments that took place years ago — African-American
men diagnosed with syphilis were allowed to go untreated so that researchers
could track the progress of the disease.
Lack of respect from caregivers
was also an issue. “Money equals respect,” one
man said. “And there’s no money to be made on us.”
Hispanic men focused less
on mistrust; more on language barriers and the fact that they don’t
readily ask questions in a clinical setting for fear of not being understood.
It was interesting that
recent immigrants were accustomed to government-provided health care, while
those who were
more assimilated didn’t expect much
from the government.
Both groups were concerned about costs. While most of the men were getting
care from public agencies, they feared increases in the income-related fees
they pay, as well as cutbacks in services.
Q/ What are some of the things that predispose men to illness and lack of
services?
A/ At the end of the focus
groups, the men were asked what kept them up at night. Most of them mentioned
getting
and keeping a job; providing for their
families. Jobs that don’t pay a living wage, high rents and lack of affordable
housing are exacerbated by low educational status and discrimination.
Also, they buy into the
masculine myth. Out of necessity, work comes first. Men don’t prioritize health unless they’re
really ill. They postpone care, compromising outcomes later in life.
Q/ What is the
Kellogg Foundation Men’s Health Initiative doing about
these problems?
A/ Kellogg became aware
of the gaps in men’s health services through
the Kellogg Foundation Community Voices program, focusing on health care for
the underserved generally. They launched a $3 million initiative in six areas
with high concentrations of low-income minority men, access problems and poor
health outcomes.
The grantees are meant
to demonstrate a number of approaches to improving men’s health.
Most of the projects function
through existing providers of health care to the underserved — municipal health facilities or federally funded community
health centers. But Baltimore has chosen to create a freestanding men’s
health center and Boston has established a nine-month program to train community
health workers to conduct outreach and case management among high-risk men.
Q/ Who benefits
from these projects, and how?
A/ That varies by project. Some serve low-income minority men generally, combining
health services with outreach and special programs.
The project in Mississippi sets aside specific sessions and hours for men
at convenient times for them. Within a general focus, the projects in Boston
and Denver are taking a particular interest in men recently released from prison.
Miami is targeting homeless men, especially those in need of mental health
and substance abuse services. Atlanta focuses on educating and counseling adolescents
on reproductive health issues and prevention of violence against women.
Q/ What do you see as the policy implications of these projects?
A/ The Kellogg men’s
health projects demonstrate innovative and effective ways of reaching a hard-to-reach
population, and they are already providing
poignant evidence of the need for policy change.
But our goal should be to get public dollars to promote similar efforts in
major areas of need in all 50 states.
Beyond that, we should
be looking at improved health insurance — if
not universal coverage, at least extension of Medicaid eligibility to all low-income
persons, without regard to sex or family status.
We need to extend the Family and Medical Leave Act so that men as well as
women receive paid leave for medical care. We need to address the need for
affirmative action among health care providers; improved communication, including
interpretation for non-English speaking patients; and assuring that people
are treated with dignity. And we also should be thinking about issues of employment,
housing, education and discrimination that underlie health problems.
In other words, health care itself is sorely needed, but community health
also teaches us the relevance of the other factors that affect well being.
There are important policy
implications here — health can be an entry
point to learn about, organize and deal with a broad range of issues.
The Role of Race, Racism and
Discrimination in Health Outcomes
One thorny issue raised by the existence of health disparities is the role
played by overt racism and discrimination. What is the proof that racism,
per se, makes you sick?
The role of stress as a determinant of health has been understood for
years. Stress has been identified as a villain that causes disease by sources
from Newsweek cover stories to highly technical studies of animals.
If there is no physical
outlet for the “fight or flight” stimulus,
emergency-response chemicals remain in the body, causing depression, increased
susceptibility to infection, diabetes, cholesterol and fat buildup and
high blood pressure. Repeated exposure exacerbates these problems.
Most experts agree
that it’s stress that underlies the social theories
about health — the added disadvantage beyond just physical conditions
faced by those who experience poverty, inequality, lack of education and
unemployment. [14]
There is growing proof
that racism is an added burden that works through stress — one that may be even more damaging for minority men because
they lack women’s coping ability.
Sociologist David Williams reviewed the current literature about racial/ethnic
discrimination. He found an association with multiple indicators of physical
and mental health, despite measurement gaps in many of the studies, the
dose-response relationship and how the process works over time. [8]
Williams’ own
work suggests that for race-related stress, the chronic presence of day-in
and day-out
discrimination is more important than major
life events, but for stress in the general population, life events are
more significant. [15]
Camara Jones, a physician and epidemiologist who directs research on the
social determinants of health for the Centers for Disease Control and Prevention,
has described how this might happen.
“We know that black folks are at greater risk of hypertension,” she
says, “but in childhood, there are no differences between black and
white blood pressure rates.”
It’s only later
that the rates diverge, she adds, and blood pressure drops at night for
whites
but not for blacks.
Jones theorizes that
constant stress results from others’ perceptions
of blacks and subtle race-based biases.
“It’s the little things that count,” she says — like
being treated differently by a store clerk. Each event may be insignificant,
but the repetition builds up. She has found that whites rarely think about
race in the course of a day, but 50 percent of blacks do. [13]
Men’s Health Initiative: Laboratories
for Community Innovation
The W.K. Kellogg Foundation
Men’s Health Initiative was launched
to demonstrate new and effective ways of filling the gaps in care for low-income
minority males. Six organizations in some of the nation’s neediest
communities are splitting $3 million in grants. Differing in focus and
administrative structure, the projects are yielding important information
about outreach, counseling, provision of health services and training of
culturally competent staff.
Baltimore City Health Department
Baltimore, Md.
The Baltimore project
has established a freestanding men’s health
center, offering a full range of primary care and social services to a
largely uninsured African American population with high disease risk. Contact
Sherry Adeyemi at (410) 396-4502.
Boston Public Health Commission
Boston, Mass.
The Boston Public
Health Commission is training young minority men to be community health
workers, implementing
case management teams and developing
a young men’s health coalition. The teams are geared to link men
coming out of prison, victims of violence and others in need to health
services in existing primary care facilities. Contact Dr. John Rich at
(617) 534-7148 or (617) 534-2662.
Camillus House
Miami-Dade County, Fla.
Through this project, licensed mental health clinicians provide outreach
and case management and link homeless men with a full range of housing,
behavioral and health services. Contact Karen Mahar at (305) 374-1065.
Delta Community Partners in Care
Clarksdale, Miss.
Three primary care
clinics in the Mississippi Delta, a predominantly African American area
with high
levels of poverty and uninsured people, are developing
male-dedicated entry points, conducting outreach, case management, community
screening and education and allocating specific days and times for men’s
services. Contact Lela Keys at (662) 624-3484.
Denver Health
Denver, Colo.
Denver’s comprehensive
safety net public health care system, including its community health
centers and hospital, has male health advisers to
conduct outreach, screening and case management and assure continuity of
care for men who are uninsured, treatment dropouts or recently released
from prison. Contact Richard Wright, M.D., at (303) 436-6850.
Grady Health System Teen Services
Atlanta, Ga.
Atlanta’s centrally
located public care hospital aims to help adolescent males establish
lasting
beneficial attitudes and behaviors regarding their
health by providing reproductive healthcare services, education and counseling.
Another goal of the project is a reduction in unintended pregnancy, sexually
transmitted infections and violence in peer relationships. Contact Marie
E. Mitchell at (404) 616-3543.
Addressing the Issue of Unequal
Treatment
In 2002, the Institute of Medicine issued Unequal Treatment: Confronting Racial
and Ethnic Disparities in Health Care. The report was notable not so much for
its conclusions, many of which have been long documented while others were
at least suspected, but for the fact that a committee of wide-ranging backgrounds
and political persuasions agreed that action is needed.
The committee chair
prefaced the report by acknowledging the sensitive nature of its charge: “[H]ealth care workers are professionals, and
beneficence, as an element of professionalism, is supposed to be color
blind.” Nevertheless, he said, “The committee finished its
work convinced that the real challenge lies not in debating whether disparities
exist, but in developing and implementing strategies to reduce and eliminate
them.” [6]
Suggestions that disparities are related not only to lack of access but
to differential treatment within the health care system are implicit in
the findings of researchers like Marian Gornick, who has been plumbing
the Medicare database for years. Gornick has found consistently that Medicare
beneficiaries who are racial and ethnic minorities are less likely to receive
regular doctor visits and beneficial procedures such as flu shots, eye
care, cancer screening, heart bypass surgery and angioplasty, and more
likely to experience limb amputations and radical cancer surgery that might
have been prevented by regular primary care. [5] Most recently she has
described the disparities faced by minority men. [11]
Uncovering the reasons
for the disparities is more complex. Cultural attitudes, communication
problems
and mistrust of the medical care community by minorities
are elements that may enter into the equation. But in addition, the IOM
said, “Bias, stereotyping, prejudice and clinical uncertainty on
the part of health care providers may contribute to racial and ethnic disparities
in health care.” [6]
Jack Geiger, a physician and human rights activist at the City University
of New York Medical School who studies the impact of racism on health,
helped research the IOM report. He says doctors share some of the responsibility.
[12]
“It’s not that they practice overt racism,” Geiger says. “It
usually happens without awareness. And that’s one reason why most
physicians are very reluctant to recognize this in themselves and their
peers.” [13]
Most experts agree
that conventional “cultural competence” training
is not the way to go.
“Focusing on the behavior of different groups may reinforce negative
stereotypes,” according to sociologist David Williams, a member of
the IOM committee. “We need to look instead at the process of how
the provider relates to each individual patient.”
Data collection on disparities within specific health care plans and institutions,
research on provider attitudes and widespread use of treatment protocols
are also suggested.
Bibliography
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MD: U.S. Department of Health and Human Services, Centers for Disease Control
and Prevention.
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DC: National Policy Association.
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14. Adler, N.E., et al. (eds.) Socioeconomic Status and Health
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The Center for the Advancement of Health is an independent nonprofit organization that
promotes greater recognition of how psychological, social, behavioral, economic and
environmental factors influence health and illness. The Center advocates the highest
quality research and communicates it to the medical community and the public. The
fundamental aim of the Center is to translate into policy and practice the growing body of
evidence that can lead to the improvement and maintenance of the health of individuals and
the public. The Center was founded by the John D. and Catherine T. MacArthur Foundation
and the Nathan Cummings Foundation, which continue to provide core funding. Funding for
this series was provided by the Robert Wood Johnson Foundation.
For Information Contact:
Kristina Campbell
Editor, Health Behavior News Service
Center for the Advancement of Health
2000 Florida Ave., NW, Suite 210
Washington, DC 20009
p. 202.387.2829 / f. 202.387-2857
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© Copyright 2003, Center for the Advancement of Health
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