GoodBehavior! Archives
DsIsSsCsOsNsNsEsCsT
Questions
were again raised about the links,
if any, between theory
and practice, when the lead author of
a new study on the limited value of stents
quickly cautioned that it wouldn't have
a major impact on the number of the $50,000
procedures done annually. What will?
A major marketing effort for a therapy
with comparable results that costs $100,000?
H
I T S
A Health Behavior News
Service story on a systematic review
on soda
consumption and obesity was widely covered,
appearing in the New York Times, USA
Today, Reuters and United Press International
as well as CBS News, CNN and WebMD. Review
author Kelly Brownell gave testimony
on the findings to the Agriculture, Nutrition
and Forestry Committee of the United
States Senate.
M
I S S E S
What's a careful patient
to do? Jerome Groopman's new book, How
Doctors Think, reports that doctors diagnose
imperfectly (getting it wrong 15 to 20
percent of the time, with half the errors
serious). He wants to change how doctors
think. In the meantime, patients should
be warned about physician imperfections.
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Elizabeth Edwards' response
to her latest cancer diagnosis offers both useful lessons
and cautions for the rest
of us.
She decided on her course
- to receive treatment while participating in her husband's
Presidential campaign.
I applaud her stance because she is responding to a
difficult situation by considering carefully the contingencies
of a complicated life and will now move forward with
confidence that this is the right way for her.
But her solution isn't
necessarily the appropriate one for others. It would
be unfortunate if she became
a role
model that they measured their decisions against.
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Jessie
Gruman
President
and Executive Director
Center for the
Advancement of Health
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Most
of us who have received a life-threatening diagnosis
find some
choices about how to respond quite limited. For
example, many of us aren't lucky enough to have
such a supportive spouse or can't afford to quit
the workforce.
Our situations
may be quite different, particularly if we are
dependent on employer-provided health
insurance. For most working people there is no
choice but to stay on the job. And few of us
have access to the broad menu of sophisticated
medical
care that is available to Ms. Edwards.
Her continuing
enthusiastic support for her husband's campaign
includes a provocative bit of irony.
He's campaigning to unite what he describes
as two Americas
and reduce the gap between the haves and the
have-nots.
Many of us strongly
support that goal. In my interviews with patients
confronting similar
devastating diagnoses,
I learned both how constrained the world
of the have-nots is when one is facing the prospect
of complex on-going medical treatment, and
how
fearful
the more fortunate are about falling into
that
daunting world. That's not a problem Ms.
Edwards will have.
After considering the resources available,
she has "made the choice to live," as
she puts it, through a series of actions
that are right
for her. All Americans should endorse her
decision and hope it leads to a long and
happy life.
One beneficial
consequence of her decision to speak about her
illness is that it may
encourage others
to think about how they would respond to
such a health crisis. But after a serious
diagnosis,
almost
all of us also "make a choice to live," even
if our lives will be foreshortened. Hers
is not the only way.
In making "a
choice to live," some of
us will continue to work, others will
be too ill to do so, and a few of us will quit
our jobs and
head off to Tahiti. Some of us will first
carefully gather medical information from many
sources before
we chart our course, some will follow
the advice of the first physician we see (regardless
of her
expertise), and some will devise a course
of treatment that draws from different healing
traditions.
Many
of us will lean heavily on friends
and family while we are ill while some guard
our
privacy and go
it alone.
There is no universally appropriate
response to a life-altering diagnosis.
Each of
us must evaluate
our own situation as Ms. Edwards has
done, and then build on the few certainties
we
possess to weave together a deeply
personal response
to our
illness with the kinds of support we
find helpful, with all the grace we
can muster
and with all
the dignity we deserve.
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AFTERSHOCK
Public interest
in Center President Jessie Gruman's new book, AfterShock:
What to Do When the Doctor Gives
You -- or Someone You Love -- a Devastating
Diagnosis, surged as the press reported
recurring cancer diagnoses for White
House spokesman Tony Snow and Elizabeth
Edwards, wife of a Democratic Presidential
contender. In response, there was
an encore appearance on Judy Forman's
internet radio show, "HealthTalk
Live."
Other
book-related appearances included
a March 29
talk at the NYU Clinical
Cancer Center and a March 26 appearance
on New York public radio station
WNYC. Dr. Gruman began the month
with a CBS News “Up to the
Minute” and subsequently was
interviewed on the WBAI (Pacifica
radio) Health Styles program and
on Andrew Schorr's Patient Power
that airs on HealthRadio.Net.
KELLOGG HEALTH SCHOLARS
The Kellogg Health Scholars program
cosponsored a workshop on behavioral
research methods with the National
Cancer Institute March 18-20. Kellogg
Scholar alumna Ronica Rooks, Kent
State University; Kellogg Community
Scholar Dawnavan Davis and Kellogg
Health Scholar Phoenix Do attended
the workshop.
NEW INITIATIVES
As part of our initiative to develop
strategies to engage older people
in their health and health care,
the Center convened three day-long
meetings of stakeholders and experts.
Participants at the first meeting
discussed the potential of public
libraries to serve as a focal point
for health information for older
people and their caregivers. The
discussion at the other two meetings
revolved around the feasibility of
community partnerships to work for
changes in local public and private
policies to reduce barriers and increase
opportunities for older people's
engagement in their health and health
care.
NEW STAFF
Jim Jaffe has begun a term at the
Center as acting vice president of
public affairs. Among his duties
will be regularly updating the blog
and sharing responsibility for producing
the daily Health Behavior News Digest.
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