Through blogs and comments, patients and experts explore what it takes to find good health care and make the most of it.

Quality Care is Compassionate Care


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Quality health care encompasses more than measuring clinical outcomes. ' In addition to treating a condition or illness, true quality care also considers a person's emotional well-being and their unique circumstances.

Lene Andersen of The Seated View writes about her experiences as a young girl with severe rheumatoid arthritis, moving from one hospital setting to another.'  During the many years she spent in rehab before and after having surgeries, Lene writes, 'I got a thorough education in what it was like to be institutionalized'places with no warmth or emotion, places more like prisons, places of abuse and brutality.' ' Lene adds, 'We now have laws like the ADA and AODA that guarantee our continued right to be here. ' Laws that enshrine the obligation of the norm to make room for the different.''  However, as the next bloggers share, making room for such differences remains challenging.

Blogger Kathi Kolb, better known as The Accidental Amazon, had what she believes was an abnormally uncomfortable colonoscopy: 'I woke up during the procedure, to find myself with severe abdominal cramping, somehow managed to mumble that I was awake and in pain, and got no help for it.' ' She also had a remarkable lack of personalized follow-up when she attempted to get accurate information about her test results and an explanation for why the doctor hadn't offered more pain relief.'  Having had a previous breast cancer experience, she describes this re-entry into cancer screening and treatment as a 'YIKES! WHEW!"

In Better Health with a Friendly Doctor, Physician Mark Thrun writes that a healthy dose of compassion and understanding from health care providers could go a long way in delivering quality care.'  While watching his son play a school football game, Mark, like other parents, worries from the sidelines that his son might get injured. ' But Mark also worries that because he is gay and his son has two moms and two dads, in the event of an emergency, he might not be permitted to stay with or visit his son in the emergency room or hospital.'  'I pray that I am never left in a waiting room, separated from my child, feeling helpless," Mark writes. ' "Indeed, my son is reaching an age where he no longer wants to be seen holding his fathers' hands. ' But that should be his choice, not the decision of a poorly experienced medical provider."

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Patient Perspectives round up recent posts from patient blogs and are part of the Center for Advancing Health’s portfolio of free, evidence-based coverage of what it takes to find good care and make the most of it.

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